11-02-2018, 11:20 AM
Thanks a lot for the support. I am now going to talk about how i go on with my daily life and some of the hardships i pass on a daily or weekly basis.
This is going to be the dark side of having multiple sclerosis. If you are not in the mood to read something sad, please dont. This post wont make you laugh i am warning you
I take a lot of meds/supplements. Some to counter-act the side effects from multiple sclerosis medicine, some for general health. I take so many that my friends and girlfriend often make fun of me and say "lol what are you 80 years old ? lol
" ofc they say it in a kind manner and not to be judgemental. I cant name the names of the supplements/meds, but i am going to list their use
1) Meds used for ADHD (i have legit ADHD caused by multiple sclerosis) in order to "wake me up" (more on that later)
2) meds for stomach protection
3) omega 3 + D3 25.000iu(d3 is taken every week)
4) supplements +1 med for sleep
5) multiple sclerosis med.
6) Testosterone every 3 months - now this is a sensitive point, but i am briefly going to talk about it. Multiple sclerosis causes ED (erectile dysfunction) in 90% of males. This ED is caused by the poor signal given by neurons, and not by having bad bloodwork. In essence, you might have perfect hormone profile, but the body acts like it has hypogonadism, even though it does not. This leads to poor erections, loss of sensitivity, and no orgasm. And if thats not all, here is where it gets even more pissing. You, as a person, want to have sex. But you body does not listen. This lead to a lot of arguments with previous girlfriends and my current one because you not being able to... do the deed, gives a lot of bad impression - you know how women are, they immediately think its their fault and that you are not interested in them.
This ED also causes one annoying side effect... During the night a lot of men want to pee, but their prostate fires up, and causes an erection in order for you to keep sleeping. Well, thats not what happens to me. If i get the need to pee, i will wake up,like my prostate does not work or something lol. Also, i rarely get morning wood upon waking up.
Now, i also take ADHD meds, as i mentioned. Well those are helping both for ADHD and my energy levels. Here is the problem, MS (multiple sclerosis) causes fatigue. And not the kind of fatigue in which you just want to go to sleep. I mean both mental fatigue, and physical fatigue, even though you sleep well at night.
How this fatigue manifests? Well, it can make even the simplest task seem tough as hell, like for example, going to the kitchen to go to bring yourself a glass of water. And no, you cant just say "man up" there. It has nothing to do with "maning up" It takes a lot of meditation to break out of this shit, and it does not always work. Also, another horrible side effect, is a headache right in the middle of the frontal lobe (your forehead, just above your eyes). This shit, can last for 30 mins, up to hours. It does not pass with any anti-headache meds, it only passes (and not always) with coffee and/or adhd meds. But even those, do not always work.
This is the so called, "brainfog". You might get asked what your name is, and its like your brain is "loading" the answer.You dont answer fast, you answer like you have some kind of internet connection delay. This brainfog to my observation is usually combined with physical fatigue maybe this is what causes it soooo...yea just imagine how bad you feel right then.
Lastly, sleeping meds. Another annoying aspect. A lot of people with MS have sleep issues, ranging from poor quality of sleep to insomnia. I am not going to talk a lot about this, but from what i understand, a lot of the symptoms, like brain fog, are interconnected together. What do i mean by that. Well, you sleep at night, 8 hours of sleep. Then you wake up next morning, and you are a complete wreck, like you partied in a house party all night with excstasy. When i wake up like this, i have no willpower to do anything. I just want to stay at home and just let the day flow, until this shit passes. Its horrible. ADHD meds kinda help, but there are days that even those meds do not help at all.
Then, there is another paradox. You wake up like you have been hit by a train, but as the night comes, you have no willpower to sleep. Like your mind is racing, even though it does not. If you "force" yourself to sleep, then you either :
1) dont sleep as much
2) wake up the next day but with horrible quality of sleep.
Sleeping meds, are the only source of help here. If i do not take them, then 90% i will wake up in the middle of the night and i will have a hard time sleeping again.
Thats it... Sorry for the long post. More posts coming soon ! They are going to be more cheerful i promise
Thanks a lot for reading
This is going to be the dark side of having multiple sclerosis. If you are not in the mood to read something sad, please dont. This post wont make you laugh i am warning you
I take a lot of meds/supplements. Some to counter-act the side effects from multiple sclerosis medicine, some for general health. I take so many that my friends and girlfriend often make fun of me and say "lol what are you 80 years old ? lol
" ofc they say it in a kind manner and not to be judgemental. I cant name the names of the supplements/meds, but i am going to list their use1) Meds used for ADHD (i have legit ADHD caused by multiple sclerosis) in order to "wake me up" (more on that later)
2) meds for stomach protection
3) omega 3 + D3 25.000iu(d3 is taken every week)
4) supplements +1 med for sleep
5) multiple sclerosis med.
6) Testosterone every 3 months - now this is a sensitive point, but i am briefly going to talk about it. Multiple sclerosis causes ED (erectile dysfunction) in 90% of males. This ED is caused by the poor signal given by neurons, and not by having bad bloodwork. In essence, you might have perfect hormone profile, but the body acts like it has hypogonadism, even though it does not. This leads to poor erections, loss of sensitivity, and no orgasm. And if thats not all, here is where it gets even more pissing. You, as a person, want to have sex. But you body does not listen. This lead to a lot of arguments with previous girlfriends and my current one because you not being able to... do the deed, gives a lot of bad impression - you know how women are, they immediately think its their fault and that you are not interested in them.
This ED also causes one annoying side effect... During the night a lot of men want to pee, but their prostate fires up, and causes an erection in order for you to keep sleeping. Well, thats not what happens to me. If i get the need to pee, i will wake up,like my prostate does not work or something lol. Also, i rarely get morning wood upon waking up.
Now, i also take ADHD meds, as i mentioned. Well those are helping both for ADHD and my energy levels. Here is the problem, MS (multiple sclerosis) causes fatigue. And not the kind of fatigue in which you just want to go to sleep. I mean both mental fatigue, and physical fatigue, even though you sleep well at night.
How this fatigue manifests? Well, it can make even the simplest task seem tough as hell, like for example, going to the kitchen to go to bring yourself a glass of water. And no, you cant just say "man up" there. It has nothing to do with "maning up" It takes a lot of meditation to break out of this shit, and it does not always work. Also, another horrible side effect, is a headache right in the middle of the frontal lobe (your forehead, just above your eyes). This shit, can last for 30 mins, up to hours. It does not pass with any anti-headache meds, it only passes (and not always) with coffee and/or adhd meds. But even those, do not always work.
This is the so called, "brainfog". You might get asked what your name is, and its like your brain is "loading" the answer.You dont answer fast, you answer like you have some kind of internet connection delay. This brainfog to my observation is usually combined with physical fatigue maybe this is what causes it soooo...yea just imagine how bad you feel right then.
Lastly, sleeping meds. Another annoying aspect. A lot of people with MS have sleep issues, ranging from poor quality of sleep to insomnia. I am not going to talk a lot about this, but from what i understand, a lot of the symptoms, like brain fog, are interconnected together. What do i mean by that. Well, you sleep at night, 8 hours of sleep. Then you wake up next morning, and you are a complete wreck, like you partied in a house party all night with excstasy. When i wake up like this, i have no willpower to do anything. I just want to stay at home and just let the day flow, until this shit passes. Its horrible. ADHD meds kinda help, but there are days that even those meds do not help at all.
Then, there is another paradox. You wake up like you have been hit by a train, but as the night comes, you have no willpower to sleep. Like your mind is racing, even though it does not. If you "force" yourself to sleep, then you either :
1) dont sleep as much
2) wake up the next day but with horrible quality of sleep.
Sleeping meds, are the only source of help here. If i do not take them, then 90% i will wake up in the middle of the night and i will have a hard time sleeping again.
Thats it... Sorry for the long post. More posts coming soon ! They are going to be more cheerful i promise
Thanks a lot for reading